I had recently increased my Gabapentin dose to 900 mg a day from the 300 mg a day I had been on for about 3 months, because of increased neck pain. Previously I had been on 100 mg 3xs a day for about 2 years and stopped about a year and a half ago because my pain had decreased. I had no trouble stopping then.
Once I had been on the 900 mg a day for about a month, I started feeling like I had dementia! I couldn’t remember things and constantly searched for words. I was spacey and just out of it.
My husband said to me one day “I don’t think you know what you’re saying”. That scared me.
The symptom that finally helped me decide to get off of it was when I started having strange eye movements. Pressure behind my eyes and even when I closed my eyes, my eyes seemed to be dancing around in my head. Hard to describe, but enough to convince me to start weaning off of it.
I know many people are on much higher doses than I was on. It is very important to steadily wean off of it, for some people, it can take months.
There are always alternatives to try. Maybe it’s time to find a new doctor who is willing to explore other drugs or other treatments to help you with whatever pain you had that led you to this high dose of Gabapentin.
I wish you the best and I hope you can find some solution to help you through your day. Let us know how you are doing!
Jetsetter thank you so much for telling what you have been going through. What you said your husband was noticing struck home with me. I have also had times of not being able to come up with words and sometimes even a whole train of thought and was, as you shared, it was scary. My battle began 41 years ago when fibromyalgia was just coming into the medical picture. In the first ten years I was prescribed upwards of 30 different medications. At one time I was taking 12 different medications at once. In the beginning I was told that it was all in my head because fibromyalgia didn't exist. After seeing three and four different doctors telling me it was all in my head, I went into a depressed state of mind. And, of course, I was then prescribed antidepressants. It was during that time where you didn't talk about mental health. But as my husband has always said(by the way he is my biggest advocate and I know I am very lucky and blessed to have him and a family who have always supported me in my journey) we need to treat and understand that what goes on above the shoulders can affect the pain that is going on in the rest of a person's body. I have tried massage therapy, acupuncture, hot and cold therapy, I have gone to a chiropractor to get adjustments. I am allergic to ibuprofen and Tylenol doesn't even come close to touching the pain. Probably the biggest problem I have been having, besides the constant pain is the guilt I feel. I see other people going through medical stuff that is so much worse than what I am going through that I feel guilty complaining about my problem. Ok, I am sorry about writing so much. You just don't know what a blessing you all are to me by relating what you are going through and suggesting different things to try. Thank you!!