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Gee, @hopefulhealing , you certainly have a lot going on! But how frustrating to not get any answers. Many members have come to Connect with the same dilemma, so know that you are not alone. Ive included a link to a discussion in the Autoimmune group that is somewhat similar to yours:
https://connect.mayoclinic.org/discussion/at-a-loss-multiple-consultations-still-no-answer-any-idea/
Maybe @change25 could join the discussion and tell you about his journey
Have you tried any doctors at a large medical center or university teaching hospital in your area? The doctors there are more accustomed to putting vague symptoms together and coming up with answers. You can try Googling “medical centers of excellence” in your state.
I hope you have some success. Will you let me know what you learn?
Replies to "Gee, @hopefulhealing , you certainly have a lot going on! But how frustrating to not get..."
@becsbuddy thank you for your response. I went to a Reproductive endocrinologist at Johns Hopkins but they basically told me all the same things as my fertility doctor. I am trying to figure out how to get involved with a program that would be open to running numerous tests and think outside the box. I guess I was hopeful the Hopkins doctor would dig a bit more and be the one to finally help, but was not open to trying anything else or digging any deeper.
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Hey Becky, I'm more than happy to share my thoughts if it helps in any way.
It's awful and frightening when you are experiencing multiple symptoms with no known cause. @hopefulhealing you've done a wonderful job of monitoring and tracking your health. Have you been with the same medical team or switched at any point?
Where I went wrong initially was presenting with too many symptoms at once where the Dr was overwhelmed and it definitely slowed my progress. It wasn't until I recieved guidance from those such as Becky where I could narrow my symptoms down to 2 or 3 key issues which drastically improved the service I recieved.
Your "IBS" diagnosis definitely needs to be looked into further. If you haven't already I'd make sure IBD has been ruled out as that can cause sinus issues along with fatigue and other issues you are suffering with. Then I'd probably see a Gynaecologist to see if they can shed a light on the other concerns you have.
You're in good hands, it's a fantastic forum with wonderful members so take everything they say on board and I wish you all the best in your journey and health.