← Return to Mayo Pain Rehab Program: Signing off and my comeback afterwards

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@rwinney

@jetsetter You have an amazing perspective. I'm impressed by your insight and patience to think things through and ride them out, for instance your neck flare, and how stress affects pain.

You mention weaning yourself off Gabapentin. As you're finding out that can bring very unwanted side affects if not done slow and carefully under Dr. guidance. Please consult your Dr. for a safe plan.

Finding distraction from pain is a helpful tool. What distracts you? Are you able to get out and enjoy nature?

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Replies to "@jetsetter You have an amazing perspective. I'm impressed by your insight and patience to think things..."

I am well aware of the dangers of weaning off of Gabapentin too quickly. I had been on 900 mg for only a month (increased from 300 a day for a few months before that for neck and back nerve pain) when I started having strange symptoms with my eyes.

I went from 900 day to 300 in too short a time, based on the pharmacist incorrect recommendation. She said that since I had dropped the midday 300 mg dose for 3 days, I could go ahead and start 100 mg 3xs a day the next day.

I woke the following day with extreme dizziness and vertigo. Luckily, it diminished within a few hours. I then called my PCP and she recommended I take 100 mg 3xs a day for 7 days, 2xs a day for 5 days and then 1x a day for 5 days, then stop. I could accelerate the decline in dosage faster if I had no adverse side effects.

I am now almost done with the 100 mg 2xs a day dose and feel better already! I don’t think the drug helped my pain that much, so I will continue to use less extreme measures such as heat, exercise, my TENS machine, and Tylenol for pain management. It may be that I am not experiencing a flare right now so that could change, only time will tell.

Yes, I have many distractions, I love to sew. I make quilts for foster kids.

Right now, I am staying near my daughter for a few weeks while she awaits the birth of her second son. My husband and I are helping with the 3 year old and will stay with him when they head to the hospital. I love to walk outside when my feet work. We purchased a second home nearby her house and are busy with furnishing it and getting organized to spend more time here.