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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Thank you for your new group
I want to know what I have, I go to so many doctors that I am not sure what is going on with my body
My rheumatologist says that she have PMR going on 5 years now, Fibromyalgia and arthritis and other forms of skeletal issues
I think that I have had every blood test known to man, I am still experiencing elevated CRP levels ,was finally weaned off prednisone which really did not help me. Another doctor told me that I didn’t have fiber but neuropathy, is there any blood test that may help with a possible diagnosis, that anyone may have had?
Replies to "Thank you for your new group I want to know what I have, I go to..."
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It may be more helpful focus on what you don't have. Rheumys usually order labs to test for specific autoimmune diseases. If results are negative, they use this as an exclusionary process along with your symptoms to conclude that you have PMR. Conventional treatment for automimmune diseases in general includes prednosone. You have to weigh the costs vs the benefit of taking steroids, which are known to have serious side effects. That's a personal choice. It's important to do your homework.