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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 9 10:31am | Replies (661)
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@lynnie1954

I am scheduled to get a lip biopsy on October 20th because the only positive test results were the ANA and dry eyes. The other tests were negative. I was just prescribed Restasis but am reticent to begin as I've heard it can cause cancer. Was your lip biopsy painful and did you get general anesthesia for the procedure? Thank you.

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Replies to "I am scheduled to get a lip biopsy on October 20th because the only positive test..."
lynnie1954 | @lynnie1954 | Oct 28, 2021

Hi there. I was in your same boat. Dry Eyes, positive ANA plus some hearing loss so they did a lip biopsy and it is negative for Sjogrens but the glands they removed are inflamed so something is going on. I did conscious sedation over general anesthesia and after a few days of canker sore pain I healed up real quick over a weeks time. Next week I go back and find out what the pathology report of "mild, chronic interstitial inflamation of the glands means. I have no lymphoid aggregates to suggest Sjogrens just a bunch of mature plasma cells....If you or anyone knows I sure would like your feedback. I have fibromyalgia plus joint pain and peripheral neuropathy.

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