Hello @gail4, I'm Rachel. Welcome to the conversation. I'm sorry you are challenged by chronic pain. Have you discussed how you feel about Gabapentin with your prescribing Dr.?

I had recently increased my Gabapentin dose to 900 mg a day from the 300 mg a day I had been on for about 3 months, because of increased neck pain. Previously I had been on 100 mg 3xs a day for about 2 years and stopped about a year and a half ago because my pain had decreased. I had no trouble stopping then.

Once I had been on the 900 mg a day for about a month, I started feeling like I had dementia! I couldn’t remember things and constantly searched for words. I was spacey and just out of it.

My husband said to me one day “I don’t think you know what you’re saying”. That scared me.

The symptom that finally helped me decide to get off of it was when I started having strange eye movements. Pressure behind my eyes and even when I closed my eyes, my eyes seemed to be dancing around in my head. Hard to describe, but enough to convince me to start weaning off of it.

I know many people are on much higher doses than I was on. It is very important to steadily wean off of it, for some people, it can take months.

There are always alternatives to try. Maybe it’s time to find a new doctor who is willing to explore other drugs or other treatments to help you with whatever pain you had that led you to this high dose of Gabapentin.

I wish you the best and I hope you can find some solution to help you through your day. Let us know how you are doing!