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HER2 positive & HER2 negative: I have both at the same time

Breast Cancer | Last Active: Oct 30 9:55am | Replies (42)
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@rkuhn

She does have a good team of doctors. I agree, treatments change and get better, but I want to be realistic and not think that I have time with her that I don't. She's not going to live a long life, she won't have children, and it breaks my heart. When she was little, I was a single mom, and we were SO close as she was growing up. She doesn't have the breast cancer gene, there isn't a history in my family. There are times I just really struggle with her reality and as her initial diagnosis date approaches, it gets harder (though I don't let her know).

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Replies to "She does have a good team of doctors. I agree, treatments change and get better, but..."
Chris, Volunteer Mentor | @auntieoakley | Oct 6, 2021

Just remember, none of us have a “best by” date stamped on our back. I read research papers every day, it gives me a constant source of hope. There is an army of people around the globe working on this.
The reason I asked about children and genetics is there is other genes besides just “the breast cancer gene” that can predispose a person to breast cancer. I have one of the other genetic predispositions.
I am going to tell you a story that will hopefully give you hope. My best friend was diagnosed with an incurable cancer (multiple myeloma) in 2004. She passed after a brutal year in 2006. In 2010, just 4 years later, my husband was diagnosed with multiple myeloma. His cancer is currently under control and he is not on any treatments for it. It will start moving again, as it always does but there are a dozen treatments left in the box to treat him with, and more all the time.
I make it a point to enjoy every day with him. The day he was diagnosed the average lifespan of a myeloma patient was around 30 months. That was 11 and a half years ago. MBC is starting to get multiple tools in the box to treat with. This is making our lives better and longer all the time.

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