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Anyone out there living with stage 4 lung cancer?

Lung Cancer | Last Active: Sep 24, 2023 | Replies (143)

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@jannad

Good Day All! I am rather new in my journey. Diagnosed with Stage 4 adenocarcinona nsclc Aug 3rd. T1,n1, m1 to pleura. My Onc started me on Alitalia, Carboplatin and Keytruda. I had my 2nd infusion yesterday. So far I have had little side affects other than weakness for the first few days after treatment and some constipaion which I handled with a chug of Miralax. I got some good news yesterday if there is any in this diagnosis. I got genomic testing results back and have the EGFR mutation. I’m going to finish two more infusions of the above chemo combination, get a chest ct scan to document progress and go from chemo to a targeted therapy pill which he stated earlier would be Tagresso if the EGFR came back positive. Although it means I will go on a different rollercoaster ride of not knowing what lies ahead, I consider this good news. Time is time and I’m grateful for it. My Onc told me the most common side effects are diarrhea and dry skin/rashes. The chemo has benefited me on a therapeutic level with the pleura involved I’ve so far had 4 thoracentis procedures to relieve the fluid build up. He feels the chemo will dry that up in the next few weeks it will reduce and stop. My actual tumor is rather small at .43 of an inch. It’s the darn pleura that’s got me. 😉

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Replies to "Good Day All! I am rather new in my journey. Diagnosed with Stage 4 adenocarcinona nsclc..."

@jannad, Good morning!, stage IV lung cancer is a cruel diagnosis, having a targetable gene mutation does help. Obviously each case is unique, but many respond well to the targeted therapies. I’m hoping that you do too!, only time will tell. It sounds like you are in good hands, take care, get rid of that pluera and you’ll start feeling better!

Glad you are doing well on the chemo. I have stage 4 EGFR with mutations since 2017 and am on Tagresso with minimum side effects. So it's a good drug. And hardly any side effects-rash only in the beginning but then settles down.Wish you good health