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DiscussionCA 19-9 and pancreatic cancer: What do the numbers mean?
Pancreatic Cancer | Last Active: Sep 9, 2023 | Replies (116)Comment receiving replies
Replies to "He is on what they call modified Folfirenox ...the surgeon is the one that keeps delaying..."
Hello my husband and I seem to be in a similar place as you..he just finished 8 treatments of Folfir and the CT scan results were good enough that the docs want us to go on to radiation..likewise hoping to become a surgical candidate at some point. There are so many hurdles along this path it is hard at times to be positive but it seems to be worth reaching for. Best of luck to you both too.
Hello, @mcendroski, and welcome to Mayo Clinic Connect. I appreciate you advocating for your husband's health as he is dealing with pancreatic cancer. I do agree with what @beachdog has said that it is important to work with a surgeon who is very experienced in pancreatic cancer.
In order to find such a doctor, I would encourage you to visit the website for the National Pancreas Foundation. On their website, they have a listing of Pancreas Centers of Excellence. If you look at that list, you might find a doctor near you, or at least within a reasonable driving distance from you. Here is a link to that listing, https://pancreasfoundation.org/npf-centers-info/. Also, here is the website for The American Cancer Society, https://www.cancer.org/. As you can see at the top of their website is a toll-free phone number. You might also consider calling them and inquiring about a pancreatic cancer specialist in your area.
Do you mind sharing how your husband is feeling? What are his most difficult symptoms now?