I’m sorry your day was rough. Those liver enzyme levels are high, but not overly so. Try not to worry yet. You already have too much to worry about!

I’ve had Raynaud’s Syndrome for 15 years. I had symptoms of Primary Biliary Cholangitis (PBC) for about 10 years, including slight numbness/encased feeling on the bottoms of my feet and itching on my back and ankles. My primary dismissed the symptoms until I developed extreme pain on my side a little more than two years ago. I was diagnosed with stage 3 liver cirrhosis. A liver specialist determined it was from PBC. I was blessed to make it on the transplant list about a year later and received a donor liver.

Last October I developed hand tremors, which were thought to be from one of my immunosuppressive meds, but in November my right leg and entirety of both feet became numb and tingly, and I was having back pain. In March I saw a neurologist who diagnosed Sjogren’s Syndrome. The numbness and tingling are now in both legs and arms. And the back pain continues to get worse, along with joint pain and stiffness. And, the itching is back. Oh, and a sore throat I’ve had since May. Plus, the Raynaud’s had gotten much worse…definitely unsettling as I live in Vermont and winter is coming! The connectivity of some autoimmune diseases is what I call it…that and bad genes!

If you don’t mind sharing, when did you begin having symptoms?