Hello @gema98, I’m very sorry about your recent diagnosis, PBC is indeed worrisome. Although people can live for a number of years before becoming too ill with liver cirrhosis. Particularly if ursodial works for them. There is no clear reason or correlation as to why people, mostly women, older than 50, come down with PBC. There are often triggers. I was reasonably healthy, fit, ate well, not on any medications, etc. I’ve read bacterial infections can be a trigger. I had giardiasis four times, so this may had triggered it in me.
Unfortunately, just after I turned 60 I was diagnosed with stage 3 liver cirrhosis. I was sent to a liver specialist who found it was caused by PBC. I had complained to my primary for years about minor feet numbness and severe itching, but it was ignored. I had a liver transplant last year.
Do you know the extent of your liver disease? Are you seeing a liver specialist? There are a number of dietary precautions you should be informed about. Also, your specialist will send you to get an endoscopy done, again depending on the extent of your liver damage, to check for esophageal varices (blood clots).
Please let me know what you find out from your liver doctor. I’m happy to answer any questions about my experience. My best wishes and stay positive!
Thank you for the information, I did have an endoscopy this morning and few more tests the next 2 days. I don’t see the hepatologist until the 14th so will know more then. Best wishes also to you!