That’s about when mine started and also continues to get worse. I gave up on Dartmouth rheumatology, but just got referred to a rheumatologist I had reached out to via email. I also saw a neuromuscular neurologist last week who believes I may have spinal nerve damage caused by both my autoimmune diseases, plus liver disease, which was previously caused by one of the autoimmune diseases, and one of the immunosuppressive meds I’m on (I had a liver transplant a year ago). I’m to have a MRI at the end of the month.

Currently I’m only on 400 mgs Gabapentin, which does help the sharp leg pain, but does nothing for my feet or back pain, numbness, tingling, etc. I don’t eat sugar, white flour, processed foods, and I walk a couple of miles each day and exercise. I am taking supplements which, with the diet and walking, seem to be helping some. Right now I just need something for back pain which so far has not been prescribed. I see my neurologist again next week so I’m going to ask him.

For me the worse symptoms are in the late afternoon and night. My back is slightly relieved by lying down, although my feet get worse. I’ve developed of late terrible itching and mild burning in my back.

Sjogren’s is not understood well by rheumatologists, so it’s quite frustrating. Are you seeing a rheumatologist? Neurologist? Are you taking anything?

Have you been to Sjogren’s Advocate…I’ve found it the best resource. I hope you can find some treatment that helps. Let me know how you’re doing.