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I was recently diagnosed with Bronchiectasis.

MAC & Bronchiectasis | Last Active: Nov 19 7:40pm | Replies (181)

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@colleenyoung

Hi @valerie613, great to hear that you have an appointment at Mayo Clnic Rochester. I’m tagging fellow members who I believe are or have been bronchiectasis patients at Mayo Clinic, like
@windwalker @jenblalock @auntnanny @migizii @joan912 @linda272 @bluesplashgirl who can tell you more of what you might expect.

Will this be your first time to Rochester, MN?

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Replies to "Hi @valerie613, great to hear that you have an appointment at Mayo Clnic Rochester. I’m tagging..."

I'll just share my experience at Rochester. I had an appt without any testing being sent there. My pulmonologist is Dr Teng Moua (and I like him very much). They did a cat scan, diagnosed bronchiectasis and Dr Moua had sputum tests done --then he set me up with a nebulizer, meds, antibiotics, etc. And I was there only overnight in a Hotel. It wasn't at all a long session and I'll be really interested in how they treat your problem -- if you would share after you've been there. It's a fabulous place and I think you will be greatly impressed.

Hi Valerie, this is migizii….when I had my first appointment at Mayo, Rochester it lasted one day. It included time with an infectious disease doctor, a CT scan, pulmonologist appointment, and meeting with a respirologist to teach me how to nebulize, etc….I did not know I had bronchiectasis when I went there, but was seeking a second opinion as our local clinic could not figure out what was happening. It turned out I had bronchiectasis for two years (as the pulmonologist reviewed old bronchoscopies) but the local doctors had no idea. The pulmonologist at Mayo did not realize I was unaware of the diagnosis as the discussion started in a manner that assumed I had known. When he realized I had no idea, he was very kind and walked me through everything. I hope you will have an excellent experience. They were very helpful, kind and compassionate.