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@noanswers

Thank you so much-yes-I am seeing a neuromuscular neurologist at Yale in Ct. I have had 3 MRI’s including the spine. They were unimpressive and determined to not be the cause of my symptoms. So my journey continues. I heard your words-“Don’t give up”-and I have heard my GP doctors words-“ You can spend your whole life looking for an answer so just let me treat your pain”. I agree with you but I let my Dr. Try and treat my pain 900mg if gabapentin and 30mg Nortripline. It helps me go out snd about but I’m with this body and all it’s crossed wires. It’s like having an epidural when you give birth. You can tolerate the pain but you still feel what is happening to your body. Only in this case it scares me. Everyday when I open my eyes I pray it left the same way it appeared suddenly and I can recognize my body again. I will send prayers your way-I watched the video and feel blessed with your encouragement. Stay well-❤️

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Replies to "Thank you so much-yes-I am seeing a neuromuscular neurologist at Yale in Ct. I have had..."

Our journeys are quite similar, sadly…It is terribly frustrating to not have answers and face pain. It’s amazing how so many people with autoimmune diseases and neuropathy suffer every minute of the day. I’ll keep searching for answers and hopefully someday some treatment.

I hope for you the same. Please keep in touch!