You are so very fortunate for the care you receive with your medical needs! This is not always the case for, I’m guessing, a number of us that live in places outside of major metropolitan areas. Our access to quality healthcare is limited; often mediocre (or less); and we travel very long distances and need to be self-determined; who are self-advocating, attempting to find resources, try not to give up, and really manage our own care. Each specialist works independently and our PCP is minimally involved. It is a challenging position to be in but it’s important to persevere for the best outcomes we can have.