Hi @lanaluka, it’s unimaginable all that you have gone through! I see you as brave, strong and quite amazing! Your world has flipped upside down with the traumatic changes you’ve had over the past few years. It’s no wonder you’re feeling depressed. I’m sure you’re also experiencing a lot of frustration, stress and anxiety over your situation.

You have undergone the difficult and arduous treatments for leukemia and stem cell transplant. You and your mother have sold everything and moved to a foreign country in hope of finding a better life and follow-up treatment for your transplant care. Did you have to learn a new language too?
How are you and your mom adapting to your new living arrangements? Are there any other family members in France near you?

Here is my thought. Since your swallowing difficulties are not frequent, they may not be GvHD at all. It could be your depression and anxiety causing the symptoms. If it was C-Gvhd, your symptoms would be progressively worse and steady. But that doesn’t sound like the case.

If everything else is good, you might not be having any new Gvhd. That would be very positive news. It would give you time for the documents to be processed until you can get health care instated.

Are you having any other health problems right now besides the scleroderma?

@lanaluka, I just read your post, and I commend you for the strength that you have demonstrated as you attempt to get medical care. I am a liver and kidney transplant recipient and I have an idea of the fears and uncertainty that you are experiencing. I think that as transplant patients we all more aware of the risk that we face. I am glad that you have met @loribmt. I also hope that you will find comfort and hope in her response to you.

I am thinking about you, and I hope that you continue to live with focus on one day at a time. while remaining hopeful that your records will soon be processed.