Anybody diagnosed with microscopic colitis?

Well duh! That would have been helpful! Before the end of the 8 weeks he had a formed stool - the standard by which all remedies are judged - and he would have stopped then, but I urged him to complete the whole 8 weeks. This was some years ago. He's probably has had to repeat the 8 weeks treatment a couple of times over the years. One time, when we were in Europe, he had a flare up and there was NO Pepto to be had. Apparently, bismuth is considered a heavy metal and banned for sale in some countries, so we always pack a *load (haha) before we travel outside the US. That would be in the old days, of course.

@crankyyankee - Haha! I also pack a lot of Pepto when going abroad! What I don’t need, I leave with my daughter there.

Thank you for posting on Pepto treatment. I have been diagnosed with collagenous colitis 3 years ago, have taken dozens of prescriptions with no relief. I have felt very ill and lost 42 lbs. Since I started the Pepto treatment I’m feeling fine. Who knew that something so simple could solve such a major problem.

What is the pesto treatment?

Pepto

Hello @wom and welcome to Mayo Clinic Connect.

If you scroll up through the previous comments on this post, you will find it mentioned by @crankyyankee. You may also use this link to go there directly: https://connect.mayoclinic.org/discussion/microscopic-colitis-2ced1d/

Do you suffer from microscopic colitis?

My husband recently had a colonoscopy and they discovered a mild case of ulcerative colitis. It was a surprise as he has none of the symptoms. The doctor (not from Mayo) wants to put him on 3.6 g daily of mesalamine. We think this is an aggressive step for a mild case of colitis with no symptoms. Are there other options? Is doing a colonoscopy more frequently an option? Taking medication daily going forward long term may have its risks too. Any comments and feedback is appreciated.

I was diagnosed two years ago with MC. Life has been a challenge...I was told it was an autoimmune disorder, but only given Budesonide no diet or other advice as the doctor thought it was a minor inconvenience...minor to him maybe, but changed my life! I tried the Auto Immune Protocol Diet for three months and can't say I saw much improvement. I have eliminated dairy, sugar, caffeine, gluten, and alcohol and still have flares that can last for days. I weaned off the budesonide and use Immodium or Lomtil to get through bad times. Then last December I developed Alopecia (confirmed by biopsies) which is also an autoimmune disorder. The doctor stated with one autoimmune disorder, I was 70% more likely to have another. I am 70 and Alopecia usually occurs in young children and young adults.

I also have MC and am working my way through diet changes but, like you, not seeing alot of change or help. Imodium, as far as I know, is a reasonable help and I am taking 2 per day right now with what I call 80% (good) results. I've done alot of research and don't think there are any harmful side effects for Imodium. I prefer the generic as it is much cheaper.

Hi @maryjos and @lbristow1 and welcome to Mayo Clinic Connect.

@maryjos You will see that I moved your comment to a discussion about different colitis problems. I did this so that you can connect with other members that may have experience with mesalamine.
You might also be interested in connecting with @dianagump who is using diet to control her UC.

@lbristow1, I see you have also eliminated several things from your diet to improve your symptoms. I am sorry that your doctor somewhat dismissed your MC. Mary's husband's doctor seems to want to provide extreme help and yours wants to take a less aggressive route. Maybe you two could switch! Just kidding.

...but, have either of you saught out for a second opinion about treatment options?