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MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "At first I had two large cavities. With the meds, the oNE cavity went away, the..."
@suzie2017 no I do not have any other disease then Bronchiectasis with my lungs. I do not take any med and have palpitation since I was 28. I control my heart with Q10. Or L Carnitine. I thank God every day for having a good health. I had my galbladder remove
so I take Milk Thistle to help digest the fat. Nick
@suzie2017 I have COPD.
My husband has periodically pain in his groin area. He has been x-rayed and everything was OK. He also has a small amount of fluid in his lungs and I have wondered if the fluid could cause the pain or possibly it is the Mac infection and it has spread to other parts of his body. Can MAC do this?
@suzie2017 Suzie, MAC can spread (diseminate) to the rest of the body, but it is very rare.
@sophie1019 Sophie, was your dx the abscessus form of mac? MAI? If so, what year were you diagnosed?
From reading many of your posts and researching pulmonary infections on the web, I wonder if my husband has received good care here in central Florida. When he was first diagnosed with pseudomonas aergera, he was put on cippro. It did not help. After that his sputum culture continued to show pseudomonas but the Pulmonologist and the Infectious Disease doctor did not prescribe anything. Then in Dec., 2017, his x-rays showed pleural effusion. X-rays after that continued to show small amounts of fluid by saying, patchy basilar infiltrates, basilar consolidation and also bronchialastis. Still no recommendation for an antibiotic. Now, we are waiting for the second culture results to confirm Mac. I do not understand why a different antibiotic other than cippro wasn’t prescribed and if it was, maybe we would not be facing Mac.
I just now read my husband’s sputum culture report on the doctor’s portal. It reads in all capital letters, ACID FAST BASCILLI PRESENT, MORE INFORMATION TO FOLLOW, PENCILLIUM SPECIES. Does this mean he has the Mac infection?
I was diagnosed in 2016.
Also, do you know who uses Clear Lungs and how is it working? I just bought some.
D0 you have COPD?