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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: May 29 7:12pm | Replies (422)

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@jimhd

I had my first infusion today and had a barely noticeable headache in the evening. #2 is tomorrow, then 2 more in 4 weeks.

I was supposed to start yesterday, but when I arrived at the cancer center where infusions are done, they wouldn't let my service dog go in, which is a clear violation of the ADA regulations. So, Sadie had to stay home, a very rare occurrence, and I was able to get in today instead of yesterday.

My hope is that the IVig will reduce the pain in my feet and ankles, and slow down the progression of neuropathy. Time will tell.

Jim

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Replies to "I had my first infusion today and had a barely noticeable headache in the evening. #2..."

ericd47 | @ericd47 | Oct 1, 2021

Jim - been at this for five years, two consecutive days per month. Our infusion center recommends a Benadryl an hour before. My neurologist prescribed Prednisone for the migraine headache that follow infusion. I stopped the prednisone after six months or so, kept up the Benadryl. Tylenol works now for occasional headache.
Neurologist started me on IVIG for pain (was at 9.5) and 'hope' that it would slow the progression of the neuropathy. Started in right leg ten years ago (although symptoms noted 50 years ago), is in all three limbs, but right leg is worse, followed by right arm.