Hello Colleen, hello group,
I'm 59y old, from Vienna/Austria and I have been diagnosed with CIDP (not sure whether I'm in the right group with that?).
It all started with a minor shoulder surgery (supraspinatus) in April 2014 where - in addition to a general anesthesia - they applied a scalenus block. Four weeks later, suddenly the pain in my left arm started and a few days later I couldn't move my thumb and index finger of my left hand any longer. They diagnosed some kind Neuropathy of the Medianus in my left arm at that time.
I have been treated with both cortison and immunoglobolin and It got better. But later on I had also pain in my right arm/hand and in my toes. A lot of diagnosis has been done and just a year ago I was diagnosed CIDP. I'm now getting iv-IGVena every four weeks (since about a year or so) and taking a low dose of Lyrica (150mg pd). With this treatment I've presently very little pain, can live very well, but a the same time it doesn't really disappear. My left thumb and index fingers are still numb.
Can anyone share some experience with CIDP or similar symptoms?
BR Wolfgang