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DiscussionReducing Exposure to Nontuberculous Mycobacteria (NTM)
MAC & Bronchiectasis | Last Active: Aug 31 11:16am | Replies (157)Comment receiving replies
Replies to "I was prescribed inhaled Tobramycin for my Pseudomonas in 2018. 2 2 week courses cleared it..."
Hello Sue - when you say 22 weeks, do you mean you took it everyday, twice a week, for 22 week? Did you have any side affects when you inhaled it? I ask because nanny said she suddenly just after taking it, when she was some weeks into taking it, could not breathe and that it was very scary, so she stopped. Did anything like that happen to you? Thank so much, Pamela
And it's not come back all those years? It doesn't show up in your sputum samples? That is fantastic.
Congratulations!
I have a lot of pseudomonas in my sputum ( it doesn't show up on ct scan) but could not tolerate the inhaled antibiotic my doctor prescribed which is supposedly more tolerable than Toby. . My lungs are very fragile and I have bad reactions to anything inhaled. Still I lasted on it for two weeks. My doctor did not prescribe an oral antibiotic because of severe digestive issues I have following surgery for colon cancer almost 6 years ago.
Currently I am stuck at home due to really bad shortness of breath and tons of sputum coming up all day.
I would love to get rid of the pseudomonas although I'm not sure that it is causing this. Right now I am just letting it grow. 🙁