Hello, @lanaluka I’m really so sorry to hear you’re having issues with chronic GvHD. Very few of us stem cell transplant patients get away without doing battle at some point with our new immune system. Or I guess, it’s our new system doing battle with us…it’s in control. We’re lucky to have this second chance at life but it can come with challenges for sure.

Scleroderma of the skin is sadly one of the more common side effects. It can really become uncomfortable with the tightness of the skin, preventing movement and flexibility.

What I’m understanding from your post is that you’re having digestive issues such as constipation for the last 3 months? Did the difficulty in swallowing happen around the time?
Both of those symptoms can be associated with GvHD. Did your doctor feel that it is not related?
Has your doctor discussed treatments for your skin such as taking an immuno-suppressant like Jakafi or prednisone? They are the standard care for C-GvHD and could possibly help your digestive issues from getting worse.

When did you have your stem cell transplant?

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