Larry, you are a gift from God to so many. I understand my sweet husband much better because of you. I cannot imagine writing from "in there'" but am grateful that your gift of the written word is precise, pertinent and practically perfect.
I did not realize that my husband's daytime sleep is a way to escape the demands/expectations of the day or a way to cope with his depression/anxiety. His nighttime antics prevent me from sleeping, but I am committed to being with him to try to keep him from hurting himself and because I love him dearly...and this causes another problem in that I don't get enough sleep because I am sort of sleeping lightly to keep an ear out for him and to protect myself. (He punched me in the hip the other night and it is still sore.. broken nose, punched ribs, etc...but it is ok because he doesn't know he does these things until afterwards when I scream out or he wakes up.) He does have a CPAP and that has been wonderful in that it seems to keep him in one place. and he sleeps under a weighted blanket and that does help him. We also invested in a king size tempurpedic mattress and this helps me sleep because he jerks and shakes as if he is having seizures all night long; this mattress absorbs this part of his sleep .. I would like to add that before the diagnosis of LBD he slept well, and could not sleep during the day. He had zero anxiety or depression - he was absolutely the most confident, energetic, pleasant and happy person. Now, the LBD has changed him in so many ways, and it is a hard road for all of us- but he does it with character, grace, and hope. I am honored to walk this journey with him.