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Trigeminal neuralgia: What helps stop the pain?
Brain & Nervous System | Last Active: Aug 21 7:08pm | Replies (127)Comment receiving replies
Does anyone have bilateral tn1 and tn2. I have both but I get very sick when taking pills. Put on nortriptyline 10 mg took it for a while got worse so I had to take 2. Started on 3 after 2 weeks got very sick from the pills. Started taking less pain starting to come back. I am no good with any kind of pills make me very sick. Has anyone had injections or surgeries for it? Does anyone have any suggestions for what I can do
Replies to "Does anyone have bilateral tn1 and tn2. I have both but I get very sick when..."
I have had trigeminal neuralgia for 15 years. At year 5 it came on like a freight train. Went to neurologist at advice of GP. Was put on Oxcarbazapine which worked like a charm but after 3 years started affecting my liver and also blood sodium dropped dangerously. At that point saw Neurosurgeon at Penn Medicine Dr John YK Lee and ended up getting a Laparoscopic MVD. This surgeon gave me my life back but now 6 years later it's back. I'm back on oxcarbazapine but only 300 mgs a day and next step MRI and hopefully appointment with Dr Lee. I am 70 and my neurologist told me there are other non invasive procedures one being Gamma knife. We shall see.
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@denny2788 you will notice that I have moved your post into an existing discussion on TN so that you may read through the discussion as well as connect with members such as @ingo who has also expressed concerns with tolerating medications.