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@pamelasc1

Hello everyone - I have been absent from our group for some time now, but now I am suddenly overwhelmed with an issue that I am hoping others have some experience with. From 2015 to 2017 I was on the Big 3 for MAC - it was cleared up but since then I have had various bouts of different types of bacteria in my lungs. The main drug used for treatment was the quinolone antibiotic, Levofloaxin. It worked like a charm. But just this winter I began to have neuropathy in my feet and toes, one of the long term side affects of Levo that can happen many months to years after taking it. Last week, my sputum sample came back with pseudemonas ( I have had it 3 times already, and always used the Levo for 10 days to clear it up). Now I am afraid to use the Levo for fear of my neurapathy getting worse. My doctor says there are no other antibiotics, other than Cipro or Levo ( both quinolones) to treat it. I do feel he is right on this, unless someone out there has been treated with something other for pseudemonas and it cleared up. ?? I think the pseudemonas is getting a bit worse and I feel totally overwhelmed with the choices I have: do I go back on the Levo, have it clear the bacteria, but risk more severe neuropathy? Do I just wait it out, and hope the psedemonas clears up on its own? Or has anyone taken something else for this particular bacteria that worked and did not carry the risks of this drug? I believe it has been banned in Germany - it really does its work, but for someone my age ( now 72) it can be very dangerous. Does anyone have any thoughts on my dilemma?

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Replies to "Hello everyone - I have been absent from our group for some time now, but now..."

I was prescribed inhaled Tobramycin for my Pseudomonas in 2018. 2 2 week courses cleared it up after 2 courses of Levaquin failed.

I had the same side effects with Cipro and Levo. Fortunately I have not had an infection that requires another antiobotic other than the ones I am on for NTM