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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
@killelea Welcome to the group. A short version of my case.
I was diagnosed with Bronchiectesis (2009)and MAC (2014) in along with some related esophagus issues called dysphagia (2017) . I have never taken the antibiotic cocktail. My main problem was the mucus. Since I’ve been diagnosed with asphagia in 2017 after a video deglutition xray I have to thicken my liquid because it was the caise of my bronchietasis. I am also taking Dr Ohirra professionnal probiotic and had a bronchoscopy in september 2017 to wash the lungs and I do not have the MAC anymore. Since I am thickening my liquid and take those strong probiotic I have no more mucus. If you take the cocktail you may want to keep your immune system strong by taking probiotic 4 hours before or after the antibiotic is ver safe not to interfere. Put your faith in God to guide you to the best solution to stay healthy!
Replies to "@killelea Welcome to the group. A short version of my case. I was diagnosed with Bronchiectesis..."
@lainey how about partially frozen jello that you can drink? Yum!
@lainey, hello to all in the group and I hope everyone is staying strong. I know it is very hard to drink something your body is rejecting. Our gag reflex is automatic and mine is extra sensitive. So I add some juice to my water to flavor it and using a straw might help to get past the gag reflex while drinking thickens liquids. Best of luck and good health!
Becky
Great idea. Jane
@chinasmom how thick is your is it Nectar?
@lainey what do you use to thicken your water?
Yes - nectar thickness
I’ve tried a gel called simply thick and a powder mix ( can’t remember brand name)
@lainey. What about if you leave it a little more liquids to get use to it. I use the same and I like the gel. It is not like drinking clear water and it feels like you can’t satisfy your thirst but you kind of get use to it. The powder is thicken use the
CLEAR but I prefer the gel. Have you had the xray video deglutition Lainey?
@lainey. What about if you leave it a little more liquids to get use to it. I use the same and I like the gel. It is not like drinking clear water and it feels like you can’t satisfy your thirst but you kind of get use to it. The powder is thicken use
the CLEAR but I prefer the gel. Have you had the xray video deglutition Lainey? Nic
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Please tell me how to deal with thick liquids. How do you get enough water to meet the daily requirement? The thick gel water is gross. I’m trying to stay hydrated but can not do thin liquids and literally gag trying to get the gell- water down. I’m supposed to drink over 60 ounces of water per day. How can you stand it?!