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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)
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@preknight

I have had PN for 25-30 years and at first it was just tingling in my hands and feet, so I did nothing. It has slowly progressed until I have no feeling in my hands and feet (except for the constant pain in one foot), balance issues, can't drive a vehicle and am very reliant on my wife. I tried numerous prescription drugs for the pain and to sleep at night. Finally ended up with lyrica (3 times a day) and clonazepam before bedtime. I still have pain, but I can sleep at night.

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Replies to "I have had PN for 25-30 years and at first it was just tingling in my..."
John, Volunteer Mentor | @johnbishop | Sep 27, 2021

Hello @preknight, Welcome to Connect. I'm happy to hear even though you still have some pain with your neuropathy you are able to sleep at night. I think that's a big help getting you recharged for the next day. There are a couple of other discussions where members have shared their neuropathy stories and what they've tried and what has helped that you might want to read through.

-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
-- Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

You might also find some of the complementary or integrative therapies listed on the Foundation for Peripheral Neuropathy's website helpful if you haven't tried them before -- https://www.foundationforpn.org/living-well/integrative-therapies/

Have you made any lifestyle changes like diet or exercise to help with some of your symptoms like balance?

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