Tips for managing chronic Small Bowel Obstructions
Hey everybody!
I joined this group hoping to find tips for managing recurrent/chronic SBOs. I had a Ladd's procedure at 4 days old which left me with scar tissue.
I started having partial SBOs at 25 but they went misdiagnosed as biliary colic because my anatomy is weird so I presented with RUQ pain mimicking gallbladder issues.
Last year in March I was diagnosed with a closed loop bowel obstruction and had emergency surgery. They found that my intestines were adhered to my liver and gallbladder and the surgeon removed my gallbladder an resected a small portion of my small intestine. That resulted in a 21 day stay in the hospital due to post op complications.
This year in June I had yet another SBO that ultimately resulted in another surgery. My surgeon said it looked like someone had dumped super glue in my abdomen the adhesions were so bad. That surgery resulted in a 26 day hospital stay ( my bowels don't like to wake up post surgery).
I am now following a low fiber/no fiber diet, work out regularly, and drink 124 oz of water daily. I have had at least 2 SBOs since being released which were both managed with an NG. I find that eating any food sets me off and have had to stick to mostly liquids.
Any tips for how to manage this thing??
Jennifer
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Awesome thank you very much. So helpful
Grandson has been hospitalized several times for small bowel obstruction. Discharge instructions say puréed foods. This is hard for an 18 year old young man. Any recipes would be much appreciated
Hi @vickicustodio and welcome! I noticed that you hadn't had any recipe suggestions so I thought I would connect you with others who have had chronic small bowel obstructions like @meggy123, @stuckonu, and @tigreyes2004
This site is actually really good for pureed foods. You cook the food like you normally would, add a couple of addition ingredients and then blend them.
https://www.oncolink.org/support/nutrition-and-cancer/recipes/dealing-with-side-effects/recipes-for-soft-pureed-foods
How is he currently doing?
Thank you Amanda. I appreciate your recipes. Grandson doing “ok” No more ER visits/hospital admissions but he is getting bored with the few recipes we have. I am excited to share with his mom
Balloon treatment once a year works for me. Also, fruits and vegetables, especially raw are a major problem. I have a great doctor who told me that you have to be careful of the skin of things like tomatoes, grapes, blueberries and also lettuce which can ball up ( even well chewed) and cause a blockage. IfI feel as if I might have a twisted intestine or a temporary blockage- I immediately switch to liquids only, especially warm ones and it usually works in a few hours. Everyone is different, so you have to experiment. BTW- mushrooms are a major no- no for me. Trial and error. Hope this helps
What is balloon treatment?
It is a procedure done to stretch strictures with a balloon inserted during a colonoscopy/sigmoidoscopy to prevent a blockage. I have it done once a year and at that time they check for activity and polyps as well. My insurance requires it is done at the hospital, rather than at at the doctors office to be covered. I think I have been having this for almost 10 years and it has worked for me. I do not have active Crohn's, not on any medication. The stricture from 2 previous surgeries is my problem
Thanks, I wonder why my Dr never mentioned it. I had 4 admissions for sbo within 6 months. NG all 4 times and sent home days later. Last admission they decided to do another surgery to remove some scar tissue. It had been 2 yrs since the previous surgery.