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fwpoole (@fwpoole)

Squamous cell throat cancer

Head & Neck Cancer | Last Active: 6 days ago | Replies (15)

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@fwpoole, I'm so sorry to hear that the big "C" has struck twice – lymphoma and now throat cancer. I moved your message to the Head & Neck Cancers group where you can meet others like @karly @skoshi, @margieinia @fxdwing and @catlyn. They can also share their treatment experiences.

Fwpoole, I can understand your reluctance to have radiation therapy given your brother-in-law's experience and your claustrophobia. Remember that not all radiation is the same. Your brother-in-law's experience will not be yours. Before dismissing radiation therapy, I personally think it is worth having a heart-to-heart with your radiation oncologist. Explain to him you concerns and reluctance. Find out what alternatives there might be. Ask what would be the prognosis without radiation. How do they help people who are anxious about closed spaces? Etc.

The final decision is always yours, but I recommend having all the information to make an informed decision, including perhaps a second opinion. Have you thought of getting a second opinion? When do you start chemo?

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Replies to "@fwpoole, I'm so sorry to hear that the big "C" has struck twice - lymphoma and..."

Thanks @colleenyoung, I guess I’ve hit the cancer lottery. I just got all this news late late week and Im still waiting on the referral to the radiation oncologist and, yes, I have lots of questions. Im also looking to get a second opinion. But, I know from experience there is a cancer playbook and a flow chart for every cancer. Im sure thats where the recommendation is coming from. Im hoping to hear from others who may have gone through this, with or without radiation.