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Small Fiber Neuropathy: Book Recommendation

Neuropathy | Last Active: Jul 30, 2022 | Replies (66)

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@greenacres

It would seem that many neurologists don't test for SFN. Can I ask what is the advantage of knowing you have SFN? Is the treatment any different from Idiopathic peripheral neuropathy?

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Replies to "It would seem that many neurologists don't test for SFN. Can I ask what is the..."

Good morning @greenacres. I wondered the same thing. And then I moved to MN and had all new providers. The first thing I was asked was....do you have a diagnosis? Not only that but where was the biopsy taken and what were the results. That information can tell how depleted your nerve cells are in a defined sample. Mine was .09 which indicated the severity of my SFN and from that what can be predicted to present an issue that needed attention.

When the numbness and pain began to increase throughout my body.....abdomen, skull, thighs, etc. there was evidence to back it up. I understand the biopsy can be from different areas.

Since I am from the "knowledge is power" group.....it meant a lot. Faster responses from providers and more understanding by the patient meant better and more targeted MFR (myofascial release therapy) as well as more research materials.

Hope this helps.......how is your husband doing? And you?

May you be safe and protected from inner and outer harm.
Chris