← Return to Behcet's disease: Would like to connect with others

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Good evening @richardrr. @johnbishop has invited me to get to know you and your neuropathy pain that appears to be in your feet, ankles and calves. And as @colleenyoung reminded us, there is not a cure waiting in the wings. We do have the opportunity to learn our "tips and tricks" from each other. As he may have told you, John Bishop has no pain with his small fiber peripheral neuropathy. I do. I have the same diagnosis that you do, complete with the tingle, tangles and pain.

I notice that my pain is not only in my feet and ankles but also in my thighs. That has been a tough area for me to control. I usually wake up with heaviness and bruising-type pain in my thighs. It is "heavier" if the barometric pressure is lower. If I just lie there for a while, it may subside enough for me to get out of bed and get going.

Here is what has been helping me get going for quite a few years now.
#1. medical cannabis......either a tincture or topical in dosages and component percentages selected for your issues.
#2. MFR.....myofascial release therapy twice a week to release restricted areas and prevent swelling. I don't think I would be driving without this form of treatment.

Have you heard from anyone about these two options? Let me know if you want additional information.
May you be free, protected, and safe from inner and outer harm.
Chris

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Replies to "Good evening @richardrr. @johnbishop has invited me to get to know you and your neuropathy pain..."

Thanks so much Chris.
I'm sorry you are in the same situation. Fortunately my hips haven't been impacted as yet. I also notice that when the barometric pressure drops that the pain is worse, it also worsens my general joint pain which is a blessing from an auto immune disease.
I haven't tried medical cannabis as yet but am ready to find a doctor that specialises in it. I know the research so far doesn't show anything definitive but anecdotal evidence does. I haven't heard of MFR and will research it.
Keep well and pain free,
Best wishes,
Richard