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Lung Cancer | Last Active: Apr 18 7:21pm | Replies (104)
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My iPad and cell phone are a big help and my husband has been wonderful, married to him 59 years yesterday. We had a nice visit to a San Diego park where we watched sail boats and took a nice walk logging 1 1/2 miles on my Fitbit. I’ve read it’s even more important to keep my lungs strong now. My tumor is .43 of an inch at diagnosis so that’s my least problem. Since this has spread to the pleura, I’ve needed to be drained of fluid 4 times. My Onc feels that will dry up with my chemo. I am grateful for the strides medicine have made for nsclc in recent years as they will buy me a little more time hopefully.
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@jannad So sorry that you are having to go through this, it’s nothing that any of us ever wanted, but many are able to live happy fairly normal lives with lung cancer. Please keep me/us posted on the biomarker testing results! This can be a HUGE game changer in your treatment. A little of my story, diagnosed March 2020 at the age of 49, I’m a never smoker, and also an adenocarcinoma. Both are factors for a gene mutation. Through biomarker testing, I found that my cancer has the ALK positive mutation. I take a targeted therapy/pills, and that has reduced all of the tumors and my lymph nodes have returned to normal. I’m able hike and bike, but do deal with some side effects from the meds. The best part…I’m alive!
We learn to look at life differently, don’t sweat the small stuff. The first year is so hard.
Hoping the the pleura settles down for you soon and that you are able to get through this difficult period. Please keep us posted.