Small Fiber Neuropathy: Book Recommendation

My neurologist also never mentioned SFN. I stumbled across a podiatrist that suggested the test. A punch skin biopsy confirmed SFN. This quest took 2 years and 13 doctors and so many procedures. I was lucky to find her. I am currently taking pregabalin for the symptoms. Now my quest is to find the cause. I am not diabetic. Mayo Clinic declined my appointment request so I'm on my own again. Try a podiatrist. It is a simple procedure.

Thank you for that information. I will make appointment with podiatrist.

My question is why are so many doctors, especially my neurologists I've had over two years, WHY are they not doing the SFN test???

For my neurologist in Tampa to not do this SFN test at all, not even confer with another neurologist in Tampa to see if that neurologist would see me asap to do the test and then for my neurologist to push me off on Mayo knowing there is a ONE YEAR waiting LIST etc.

I am furious with some of these doctors.

I feel the same. My neurologist had me do all of his tests, MRIs, etc. he never said a word about SFN. He sent me to balance therapy. I just kept seeing different types of doctors trying to find out what was going on until 16 months later I found the correct podiatrist. She was the 5th foot/ankle specialist and the 2 podiatrist I saw. I just got lucky. I have since let my neurologist know of my displeasure with him and "schooled" him about SFN in hopes it will help someone else. Waiting 2 years for a diagnosis is so discouraging. You lose faith in doctors. Good luck and don't give up!

I just went and got my MRI results of my brain and my lumbar and thoracic spine today since my neurologist never bothered to send me their results in my patient portal or message me with the results.

As I'm reading it the radiologist for the MRI of my lumbar and thoracic spine sees some degeneration He mentions several spinal cyst but doesn't act like it's a big deal. He does not see any impingement upon the spinal cord and with

my brain MRI he did not really see anything except for A nonspecific f l a i r signal abnormality is present in the right frontal centrum but his conclusion is no acute or structural abnormality identify to account for the patient's symptoms. But I wonder what this FLAIR is That's a radiologist saw on the MRI but then he acts like it's no big deal but when I look up that word it seems like it has some ramifications from it.

For the findings for the MRI of the spine he just put no significant spinal canal or neural foraminal narrowing, no focal nerve root impingement, scattered root sheath cysts
And hepatic cysts

Isn't a hepatic cyst have to do with your liver? Why would he comment on my liver if he's looking at my spine?

Find another neurologist. You may have to see a few before you get the right one.

i had mayo clinic in phoenix diagnose me an secerla others. So look around and make sure they do all the test that they can

Hello @ingo, Welcome to Connect. You mentioned you were diagnosed by Mayo Clinic in Phoenix. Are you able to share a little more about your diagnosis or what you were searching for when you found Connect?

If it helps I have autonomic small fiber neuropathy and had major surgery in June and I didn’t see any changes in my neuropathy.

Good evening @trishh, I have small fiber peripheral neuropathy and had a total knee replacement six weeks ago. I think you need to discuss the issue of medication for your neuropathy not being reduced or forgotten. It is important to maintain your treatment program. And as I say that, you may receive pain medication relative to your hip replacement surgery which might somehow interfere with your SFN program.

I had a bit of a hard time keeping everything straight. So I turned it over to my live-in caregiver. Now, he did a good job.
Do you mind sharing what you are currently using to control your SFN symptoms? Thanks.

May you be free of suffering and the causes of suffering.
Chris

How is SFN diagnosed?