← Return to Bilateral Mastectomy without Reconstruction Recovery Timeline

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@keepmoving2

Hi - sorry for your reoccurrence of cancer. I underwent a double mastectomy in Sept 2019 - cancer in both breasts and lymph node involvement. Knew going in if that was the case, would postpone reconstruction because of believed need for radiation. Month later found out I was stage 4 so no need for radiation. Yes - recovering from the surgery was a bit easier without the reconstruction of any type. Did spend the night in the hospital b/c of extensive involvement but next day walking outside and kept that up thereafter. Drains a pain - got colorful ribbon with safety pins or tied to hold bags in place. Special shirts were okay. Back to work in 3/4 days. Weaned myself off heavy duty meds during day - only took at night to help sleep - helped to elevate myself. I need a nerve blocker the most. Drank lots of liquids and kept foods healthy. I had drains in a bit longer than the normal 1-2 weeks, again b/c of extensive involvement. Also insist that they give you waterproof bandages so you can shower at home ASAP (some people say saran wrap but I was happier cutting out fresh covers). That made me feel better immediately. You have to keep a record of your drainage amounts. Make sure you do your therapy exercises to get full range of motion. Yoga and swimming allowed me full motion but I do have some missing upper arm skin feeling and some lymphoedema in my arm. Fast forward to December 2020, Verzenio and Armidex have me stabilized and I started the reconstruction process with expanders. Uncomfortable for a longer period of time, drains again but manageable. Did on a Friday so only missed work that day. Cancer came back in early May, got expanders out and elected to not do any of my own tissue filling etc. 18 months of no reconstruction suited me just fine and I got very used to no breasts or just putting on a bra with inserts. But my husband and friends thought I was too young at 57 and would question it later. I will say I am very glad to have down the reconstruction surgery - it does not cost you more as insurance is mandated to cover it. Good luck with it all - if you need more specifics don't hesitate to reach back.

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Replies to "Hi - sorry for your reoccurrence of cancer. I underwent a double mastectomy in Sept 2019..."

Thank you. I wish you well with your latest recurrence. Are you in treatment again now?