Just heard back from my pulmonologist and I do have mac. She said I have no lung damage. Don't know what that means. I sent her an email asking if I also have bronchiectasis. She referred me to the iD in her building. She is in redwood city CA. I usually go to Stanford but when I was really sick and scared last month I took the first pulmonologist who saw me and she is very on time of it with communication and her actions. I researched her referral and no talk of Mac on website or reviews but did just see a doc referral link on this site and ask my pulmonologist to refer me to David Epstein at Stanford and also to do a referral to NJH. My pulmonologist said she has worked with them with some of her patients. I suspect they will put me on meds and I will take 3 times a week. I am on Tamoxifen so a bit scared how this is all going to work.
Big question to you all. My primary doc said she wouldn't get a covid booster if she were me but pulmonary doc has encouraged me to do so. I teach K in CA and have a 14 year old daughter. I think I should ASAP. Anyone out there had experience with getting a booster and having MAC that is untreated with antibiotics. Sorry to bug you all with this journey but so little info and rather scary all the info on the web when you google MAC. Especially mortality. THANKS!