I had tilt table and it was negative. One cardio Dr in GA two years ago felt I might have dysautonomia but two other neurologists and my cardio doctor now in FL are not sure if I have dysautenonia, most said probably not but most my symptoms that affect me from head to toe appear to be some sort of neurological malfunction.

My recent Neuro doctor said regarding my muscle twitching that I have from head to toe that I have benign fasciculation syndrome and not ALS because I've had the test that ruled that out. I've had every blood test you can think of and lots of other tests yet the endocrinologist here in central Florida and a neurologist from Tampa and my cardiologist here in Lakeland all point in a different direction as to what they think it might be but there's nothing definitive not ever. So my neurologist here who for some reason does not do the small nerve fiber biopsy to rule that out has referred me to the Mayo clinic in Jacksonville Florida and they have over a 1-year waiting list to see a doctor. That's why I'm taking the ball into my own hands and I'm going to start researching and find out what it is because it's definitely something that almost 2 years later I'm still dealing with it. And I'm so sick of it. What is more frustrating is that one doctor cardio doctor here in Lakeland Florida said I had Vasovagal yet I did not fail the tilt table test but then another cardiologist in that same office said no you do not have vasovagal and he told me to go back to my neurologist. So I can't get any of these doctors even from the same office to agree on anything.

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