← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Discussion
Comment receiving replies
@suzylulu

I am restarting the drugs for MAC. - Ethambutol, rifampin, clarithromycin. Was on the big 3 several months ago but got so sick had to be taken off. So we are trying again-3 times a week. Are there any suggestions on best time of day to take and typical side effects. Thanks everyone.

Jump to this post


Replies to "I am restarting the drugs for MAC. - Ethambutol, rifampin, clarithromycin. Was on the big 3..."

I just started the big 3. Sorry to hear you have gone through the process of being so sick. My pulmonary Dr recommended I take the same 3 pills you are just before I lay down to sleep. Since one of the pills recommends eating before taking I eat Chobani Greek yogurt or PR2 Chocolate peanut butter and crackers, sometimes Boom Chicka popcorn. She recommended this regime to hopefully ward off nausea. So far it has worked and I am starting week 2. I have woken up with a weird taste in my mouth and 1 soda cracker helps to lessen that.   RMMMKE 

It was just good being done with the meds. Probitotics were very helpful. But all of the meds seem so distant now. IN fact, I had to go into my memory to recall the names. My focus now is on keeping the bronchiectasis from progressing. Thanks and good luck with the treatment.

@suzylulu, I am on the 3 antibiotics now for the past 8 months. I did have to go off the Ethambutol last month due to having such difficulty breathing. So far the only other real side effect I have is horrific body pain and joint pain. I am sure that is from the antibiotics as well but you do what you need to do to try to get threw this. I take Clarithromycin 500 mg 2 times a day and I also take Rifampin 300 mg 2times a day. I also take morphine and oxycodone for the pain. If I can be of any help please text me.
I wish you the very best

I had pain with rifabutin and was changed to rifampin and that helped. Maybe it's the rifampin as it is in the same class

I notice on my pill days water seems to taste different

I take rifampin on an empty stomach and Azithromycin and ethambutol with food. I have to tell you all. It has taken be 62 years and the big 3 to clear up my adult acne breakouts. Not the way I had hoped to get rid of it.

@ mac5ia , thanks for sharing with us! We can all relate to what you are experiencing. Chobani greek Yogurt may not be such a good idea since it has probitotic and it give you good bacteria and the antibiotic kills them. You must ght want to check with a drug specialist like a pharmacist it can interfere with your antibiotic but it would be a good idea to take a good strong probiotic in the morning to give yourself good bacteria. It is so important when you take antibiotic. It will also take good care of your gut! My doctor recommend it when I take antibiotic for any infections. Keep taking good care of yourself! I have never taken these antibiotic instead I take Clear Lung when I feel my lung might have an issue to cough the mucus and use aDr Ohirrah probiotic. We will send you good vibes of energy! You can get rid of it with your courage! Xxoox

@sysylulu, i have never taken the big cocktail but when I take antibiotic I try to take them at or supper time so I can take my probiotic in the morning not to interfere and to prevent too much side effects. You are the only one who can find the best time. Probiotic will give you good bacteria but you need a 30 billions and more to keep your immune system strong. Home many doctors are recommending them. (Specially since the C difficile where elder people were dying from)