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Aromatase Inhibitors: Did you decide to go on them or not?

Breast Cancer | Last Active: May 12, 2023 | Replies (1190)
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@bluebird70

Good morning All! I needed you this morning. I have struggled through the 3 AI’d and now Tamoxifen. I have been on Tamoxifen for a full 3 months and last week had such bad rib pain I discussed with onco and I am off for 2 weeks. 1 week later it is better but not totally gone. I am 71 had stage 1 BC grade 3, right mastectomy 18 months ago and no lymph nodes, onco type score of 51, so have a high percentage of recurrence so had chemo. But I am so close to stopping these pills altogether. I struggle every day and go down rabbit holes I don’t need to go down but it is hard. Is the rib pain bone cancer??? Those types of holes. I read your comments and feel such a kindred spirit. Thank you all❤️❤️❤️

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Replies to "Good morning All! I needed you this morning. I have struggled through the 3 AI’d and..."
Chris, Volunteer Mentor | @auntieoakley | Sep 24, 2021

Please remember you are there for us too! Thank you. If your rib, bone pain is persistent when off the AI, I would advocate for a bone scan but if it gets better……………Because of your recurrence risk, I would hate to think you gave up. But I would understand why. Have you tried walking a bit, is that an option for you?

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jkh | @jkh | Sep 25, 2021

I’m so very sorry that you are in such pain. It is impossible not to worry that the pain you feel is cancer. I have been on 2 of the AI in the past 2 years. My pain comes and goes. I take ibuprofen during the daytime if it’s too much and to sleep I take melatonin and two Celebrex. Right now it is working🤗. When I was feeling overly concerned as soon as I got out of bed I would place my hand on my heart and say some positive affirmations to myself. After a week or two I truly started feeling happier. Good luck to you and everyone here!

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shells555 | @shells555 | Sep 28, 2021

Hi I’m on Letrozole and doing well. I actually have very minimal side effects. It is also an AI so maybe you should talk to oncologist about changing pills.
Good luck…

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