Hello @blewellyn - Welcome to Mayo Clinic Connect a place where folks can share their experiences which will hopefully help others.

I had Large B Cell Lymphoma so my treatments prior to Car T would be different than your moms. Prepping for Cart was not particularly difficult, having all the pre therapy tests was quite typical, the apheresis process (Took about 3 hours) to harvest the cells was very straight forward. I underwent 3 sessions of chemotherapy prior to the modified T Cell infusion. Once the cells were modified, the infusion of the new T - cells was very simple. It was the second day after that that I started to encounter side effects. I had pretty much all the published side effects that we were told about. Neuro toxicity, Cytokine Release Syndrome (CRS), slow heart rate, high fever. I spent 2 weeks in hospital one of them in the ICU. I encourage you to take note of all the side effects that are described to your mom by her practitioner. I was extremely weak for some time after I left the hospital.

I hope you find this information helpful, be cognizant of the fact that side effects and their degree can be different for everyone. I am so glad that you will be along to support your mom, I remember I was instructed to have a caregiver at my side for six weeks post infusion, this was excellent advice as I would not have been able to manage on my own as an outpatient.

When is your Mom scheduled to have her treatment start?

Bob