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@athenalee

That’s great you’ve mastered voice recognition. I have to practice more! Adjusting to PN is tough. And, the symptoms are so weird. For me it developed suddenly and definitely unexpectedly. Thought after my transplant life would get back to normal…not!

Driving has taken a lot to get use to. Do you have numbness? I can’t really feel much in my legs or abdomen. It’s been developing in my arms too.

I can relate to lack of medical services in rural areas. I live in southern Vermont, my town has 12,000 population. We do have an ok hospital though as our area is quite cultured and very touristy. There’s two neurologists, so it does take a while to get an appointment. But the one I saw successfully diagnosed the new autoimmune disease I developed that is causing my PN. So, you might be able to find one not too far away I hope.

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Replies to "That’s great you’ve mastered voice recognition. I have to practice more! Adjusting to PN is tough...."

Yes, PN does seem to get worse. Driving becomes less safe, for me mostly when traveling a greater distance. I am concerned about my reaction on the brakes with feet that feel like cement shoes. Recently the left side of my head became numb, prompting a head scan last week. Fortunately the results were good with no signs of stroke or bone or brain damage. Such a strange place for it to occur.
I did read up on the new wrist worn device the FDA approved for tremor so that is a little encouraging (Cala Trio from Cala Health). I pray for more technological advances to move toward solid results for all those suffering! It is a journey along a road with many potholes, but there is hope and companions to help carry the load!