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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
I have autonomic small fiber neuropathy and my life has changed drastically. I have no stamina to do things that I used to do. I have burning pain 24/7 in my thighs and knees. My feet have a numbness to them. My neurologist prescribes 600mg of Gaberpentin taken three times a day. It does help but it’s not a cure all. She had a compound made for me with five different ingredients which I rub on my thighs and knees nightly. Since I have autonomic small fiber neuropathy my bladder crapped out in 2013 facilitating the need for bilateral bladder stimulators. I am also getting the smart pill test November 2nd to check for motility issues.
Replies to "I have autonomic small fiber neuropathy and my life has changed drastically. I have no stamina..."
What is in the compound prescribed and does it help?
What is the smart pill test?
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Hello @dianecostella,
I can sympathize with the numbness and mine is popping up even on my scalp. I have both legs numb below the knees and yet have occasional sharp stabbing pains in my feet and toes, feels like bones are being crunched. All part of my PN I am told. I have not have any pain relievers except over the counter, and Xanax for anxiety and pain attacks. The bladder issue is new to me. I pray that your pain can be relieved, and your testing goes well. I am looking into some supplements to try, maybe a formulated mix like you describe. No cures I understand but we keep hoping!