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Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)Comment receiving replies
Replies to "FYI all. Just received notice from NTMandBronch360 (to which I subscribed a while back) as follows:..."
Thanks Boomexpert darling! Real nice of you to share with us!
@boomerexpert, Hello. I tried the link that you posted and it just took me to a generic website saying they do research world wide or rather help researchers. It did not mention any NTM research. I don't know if I just didn't dig around hard enough or what....I have not tried calling him yet. Have you looked into this at all?
@,nannette , Nannette! I was just thinking about you yesterday. Was wo dering how the heck you are doing. I hope that you are not back on this site because you are having lung issues.
@boomerexpert ....thanks for keeping us posted, tdrell
I sent him an email which he read...recommend you do same...contact them directly.
Just heard back:
Thank you for your interesting in our study. Due to an overwhelming response we will be programming the screener questions. Within the next couple of days you will receive a short 8 minute survey to see whether you qualify for our research. If you are selected, you will receive a follow-up call to schedule your interview. Please let me know if you have any questions.
Have a great day,
David
I responded that I hope he pays attention to the "overwhelming response" as a clear indicator of how great the need is...
is that David from Ait?
I just wrote to him also. mentioned Nitric Oxide also. xo Christa
I got the same message back and I also sent a reply that they now have their first clue that this is a real problem. Everyone needs to keep responding
@boomerexpert. Thanks so much for this information! I will definitely call or write and see if I can participate. Nan