Connect
← Return to Looking to connect with people who have non-diabetic neuropathy
Discussion
Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
Hello @athenalee,
Thank you for your reply. I appreciate the very helpful websites and suggestions as I am just exploring my options from basically the beginning. Not that I haven’t had this a while, however, as a typical guy you know we don’t need to stop for directions! Stubborn I guess. My reading of all of these comments in materials has really made me more aware and wanting to learn more. PN has such a number of different symptoms I went for years without even a diagnosis therefore I did not focus on it. I retired 2 years ago and now it has my attention. One of my favorite things I used to do was write and print. I do miss that.
I am so happy that you were able to get a liver and hope that things go well for you. It is difficult enough with just the PN but with anti-rejection drugs and all that go with it I can’t imagine.
I especially appreciate the website for assistive devices. This reply is totally done with voice dictation and I use it all the time including Siri. Fortunately I am fairly computer literate and use mostly Apple products which have great assistive features.
The only neurologist I have is the one I saw at Mayo a few years back. I am not aware of any local specialists here in central Illinois. I probably should check into that, I don’t know why I have not. Thanks again!
Replies to "Hello @athenalee, Thank you for your reply. I appreciate the very helpful websites and suggestions as..."
Connect
That’s great you’ve mastered voice recognition. I have to practice more! Adjusting to PN is tough. And, the symptoms are so weird. For me it developed suddenly and definitely unexpectedly. Thought after my transplant life would get back to normal…not!
Driving has taken a lot to get use to. Do you have numbness? I can’t really feel much in my legs or abdomen. It’s been developing in my arms too.
I can relate to lack of medical services in rural areas. I live in southern Vermont, my town has 12,000 population. We do have an ok hospital though as our area is quite cultured and very touristy. There’s two neurologists, so it does take a while to get an appointment. But the one I saw successfully diagnosed the new autoimmune disease I developed that is causing my PN. So, you might be able to find one not too far away I hope.