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Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: Oct 29 2:54pm | Replies (1225)

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@dwoody59

In 2006 I had middle epigastric pain, which radiated to my left side under ribs. I went thru years of testing. Pain meds even went to Cleveland clinic. No one had a answer. Finically after years 2016 I was sent to a vascular doctor, he ran MRI. Found I had a rare disease called ciliac artery compression syndrome/ Dunbar disease. I had lost to 89 pounds. The only cure is surgery and I am not a candidate. Today the pain is worse. And gets worse after eating. It keeps me up all night. I’m weak. I do not like pain meds. I’m on a low dose. And it makes me sick. This causes my blood pressure to raise really high , I get tightness in my left neck and jaw. Pain in my left chest area. But there is nothing they can do. But want to throw pain meds at me, which makes me mad.

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Replies to "In 2006 I had middle epigastric pain, which radiated to my left side under ribs. I..."

Hi @dwoody59 and welcome to Mayo Clinic Connect. Celiac artery compression syndrome/ Dunbar disease is also known as MALS so you will see that I moved your post to a very long standing discussion with many members engaged in conversation about the very same condition. There is a lot of support surrounds this condition.
Median arcuate ligament syndrome: https://rarediseases.info.nih.gov/diseases/12308/median-arcuate-ligament-syndrome

Have you found any locally at all?