Connect
← Return to Looking to connect with people who have non-diabetic neuropathy
Discussion
Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: 6 hours ago | Replies (910)Comment receiving replies
Thank you @johnbishop for your wonderful information. My numbness which is unexplained is probably the biggest issue along with an increasing need to cut back on things I like to do most. It is becoming apparent to me how personalized each of our experiences are and how no one approach works for everyone. I thank you for the information and I will continue to not only watch here but explore new options as I move along and share anything that I find beneficial.
Replies to "Thank you @johnbishop for your wonderful information. My numbness which is unexplained is probably the biggest..."
Connect
I have autonomic small fiber neuropathy and my life has changed drastically. I have no stamina to do things that I used to do. I have burning pain 24/7 in my thighs and knees. My feet have a numbness to them. My neurologist prescribes 600mg of Gaberpentin taken three times a day. It does help but it’s not a cure all. She had a compound made for me with five different ingredients which I rub on my thighs and knees nightly. Since I have autonomic small fiber neuropathy my bladder crapped out in 2013 facilitating the need for bilateral bladder stimulators. I am also getting the smart pill test November 2nd to check for motility issues.