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What's outside of your picture window today?

Just Want to Talk | Last Active: Nov 9 8:02am | Replies (2396)

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@artist01

@loribmt. So, Lori, you're musical too, added to your other many talents! Wow! It's sad that our bodies have to give up certain talents as time creeps up on us. I was taking piano lessons - a lifelong wish I had - before this dang GCA got me in 2019. BUT, good news...my rheumatologist the other day was very pleased with my GCA progress and cut my imunosupressant Actemra injections back from weekly to every TWO weeks! Yaaay!! She hadn't seen me since before Covid and hardly recognized me from the Prednisone-induced moon face, bloated body, and 55 extra pounds I sported then. We were both feeling celebratory over that too!!

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Replies to "@loribmt. So, Lori, you're musical too, added to your other many talents! Wow! It's sad that..."

Laurie, that’s such fantastic news from your rheumatologist! You have to be over the moon with the progress report and I’m rejoicing right along with you, m’dear.

Isn’t it rather fun when you get a chance to visit with someone who hasn’t seen you in a while? Especially after going through a significant medical ordeal that’s changed our looks? People who knew me before AML & transplant remark how differently I look because I lost over 30 pounds, hair is no longer a messy bun on my head, And of course, medical staff who saw me through my medical stuff don’t recognize me at all until I speak! I have now hair, meat back on my bones and don’t look like a zombie or later as a bloated zombie. Prednisone is a miracle drug but sure can alter the face, neck and tummy area. I was on 500ml weekly infusions so it was a lot!

Not sure why I no longer play banjo or guitar. But it wasn’t the body giving up. LOL. I think life just got in the way as it was more a hobby than a calling. I did try the guitar a while back, still remembered the strings and chords. But my fingers no longer have calluses and I’m not willing to put that effort or pain back into resurrection. 😂

Have you considered trying the piano again? I took lessons as an adult too.