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Behcet's disease: Would like to connect with others

Autoimmune Diseases | Last Active: Sep 26, 2021 | Replies (5)
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@colleenyoung

Hi @richardrr, welcome. Allow me to tag @spankytwo2 @mrmaid11 @senlw @jackie30 @mel66 @cheerfulheart, who all have experience with Behcet's and may have some thoughts for you about neuropathy. You can read more about their experiences in this discussion.

- Behcet's Syndrome: What treatment has worked for you? https://connect.mayoclinic.org/discussion/bechets/

Richard, you've been living with Behcet's a long time. I'm glad the disease is largely stabilized with the exception of the neuropathy. Can you describe your neuropathy? Do you have numbness only or pain as well?

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Replies to "Hi @richardrr, welcome. Allow me to tag @spankytwo2 @mrmaid11 @senlw @jackie30 @mel66 @cheerfulheart, who all have..."
richardrr | @richardrr | Sep 21, 2021

Thanks Colleen.
My feet have pretty much lost all sensation and I get pain into them. My ankles feel frozen and unable to move but can as normal and my calves feel as though they are being squeezed in a vice. As far as pain it is mostly in my feet and shooting nerve pain from time to time in the calves.
There isn't much variation between the lack of feeling and discomfort day or night, hence poor sleep.

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