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Aromatase Inhibitors: Did you decide to go on them or not?
Breast Cancer | Last Active: May 12, 2023 | Replies (1190)Comment receiving replies
Ok, I have another question about Tamoxifen. I've been on it for about 2 1/2 years. I had switched from a couple of the other AI drugs. I have about a year and a half to go. It has had a severe effect on my hair. It has thinned,and completely lost all body and I'm wondering if anyone else has had this reaction to Tamoxifen.
Replies to "Ok, I have another question about Tamoxifen. I've been on it for about 2 1/2 years...."
I took Tamoxifen back in 2003, when I had DCIS. I took it for 3 1/2 years. I told my oncologist it was affecting my hair. If I remember correctly (that was many moons ago) my hard turned dry and brittle breaking off. My oncologist said take a break from Tamoxifen- if your hair gets better you can stop tamoxifen & if not just finish out the 5 yrs. I just quit it after the 3 1/2 years. My hair turned healthy again.
What is interesting is the oncologist I’m seeing now told me they did a study / he said probably 20 yrs ago - that on the same timeframe I was taking it - & the study showed no effect on hair 🤷♀️
We have to do what is best for us & our bodies …and … Quality of Life.
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My hair did not thin and change texture, but I did have a buildup, I had to stay ahead of, or my hair would star falling out. I found using the nioxin shampoo, or the generic equivalent about every other washing managed it.