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Disabling symptoms since distal bicep repair surgery. Any suggestions?
Bones, Joints & Muscles | Last Active: Oct 17, 2023 | Replies (72)Comment receiving replies
Tha k you so much for asking. I am still plugging along but haven’t had any real improvements. I am still unable to go to work or do much except try to get through each minute of each day. I’ve had a lot of labs and testing done which has not pinpointed anything specific, unfortunately. I was able to get referred to Iowa City hospitals in 3 weeks, so I’m just trying to hold on until then and hope I get lucky and they find something tangible
Replies to "Tha k you so much for asking. I am still plugging along but haven’t had any..."
I would like you to call Mayo Clinic on your own. I don’t know why your doctor was refused, but Mayo will make an appointment for anyone. They might have a back log, but you should get an appointment.
When you call, say you need appointment with …. Name the department. The person will ask you for some details to make sure you get the best doctor. Mayo is in Iowa, or call the main number in Rochester if you can get there. They see millions each year, there is no logical reason for turning you down.
Please make an effort on your own wo your doctor. As they work as a team, if first doctor can’t help, you will be referred to another. I pray for you getting the best help possible.
Hello @stevetaylor721
I just read about your post-surgery health problems. I'm so sorry to hear that you are dealing with such difficult symptoms. It is frustrating to have a major change in your life and then have no answer as to why.
I'm glad that you will be getting another opinion. I'm not family with Iowa City Hospitals. Is this a university medical center?
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Hi @stevetaylor721. You had me at Coach! I come from a very sports minded family, and have a coaching husband. Many props to anyone who coaches (if that is indeed what your title stands for).
I'm Rachel, welcome to Connect. I combed back through your posts to get caught up and was sorry to see you still do not have any solid reasons for your health disturbances since having bicep surgery. It's awesome however that your bicep was repaired successfully.
You've had great support and advice here on Connect which is why it's such a wonderful community. I'd like to throw you a curve ball with a little something different. If you feel up to it, do you mind watching a video presentation that I've attached on Central Sensitization Syndrome (CSS)?
CSS is an upregulation of the central nervous system and sensory input system. CSS can be upregulated by traumatic events, surgeries, you can be born with it. It's tough to pin point as there are no tests to prove, just process of elimination.
https://www.youtube.com/watch?v=8defN4iIbho
As you continue your search for answers, and visit Iowa City Hospital in three weeks, take a look at this video presentation from Dr. Sletten of the Mayo Clinic, and keep it in your back pocket in case nothing else seems to make sense.
I'm wishing you continued perseverance and hopefulness in your journey. You sound like you know how to stay positive, and that's what it takes sometimes, despite being tested.
I'll be curious to know your thoughts on the CSS video. Do you mind getting back to me?