I’m with you there, Billy. I like to know what’s coming too. Maybe it gives us a little feeling of taking charge over a situation beyond our control. We’re all scared to run out of time.
It’s good you have such large support system around you of loving family and friends to help give you some comfort. While they’re great for helping bolster morale and keeping your spirits up, they haven’t walked your walk.
So I’m hoping we have some fellow lung cancer members who can help you understand what will be expected in the near future.
I do hope you take my advice and contact your oncologist’s office to talk about palliative or hospice care. They are so valuable in helping you face what’s ahead and provide answers for you.

Just remember, you’re not alone here on Connect. Most of the members in our community have faced cancer, severe or debilitating illness or are the caregivers. We’re empathetic and do our best to offer support, encouragement and hope.
You mentioned not being able to have treatment? Is this due to age or severity of the lung cancer? I

@billy1of3 I can understand your fear and anxiety over the “road map”. The one thing I can tell you is that everyone has a slightly different road map. I have been blessed to be the person in the room during the last breath several times. This is my role in what used to be a fair sized family. I believe that is because God (feel free to change descriptor) chose me to be compassionate during the scariest time a person faces. I consider this a sacred time in a life, there are some physical things that most (not all) people have in common during this time. A sort of slowing down, if you will. But there are a few stages mentally people go through, not every person goes through the same stages and there isn’t a hard and fast plan. The folks at hospice or the councilors should have some reading material for the family, and you should read it as well. I believe it will ease some of your fears. Also if you are a spiritual person you should connect with your spiritual advisor, whomever that is, at this time. All of these can alleviate fears. I always give my family a few pieces of frank advice during this time.
Anything you can do that you love to do, or would love to do, do it now. Anybody you want to call or visit, if you can, do it now.
Anything you love to eat, eat as much as you want now. Reminiscing is really good for the soul, let go of the bad parts and truly enjoy all the good and funny parts. Remember, this is YOUR journey, and anyone you choose is just along for the company, and for your comfort. I cannot tell you for sure what goes on inside of a persons heart or head, but I can tell you it does not have to be frightening or agonizing.
Please feel free to connect with me here anytime, and I will be happy to talk.

Hi Billy - I will chime in here briefly. My Mom was in an independent/assisted living facility, where my daughter just happened to be the nurse/case manager. They had a (part time) social worker who was always more than happy to take time to help the residents and their families understand what was coming. Ehen the time was right, she was awesome at finding the right palliative care/hospice fit for each person. Maybe you could check into that?

Another option would be through the local arm of the Cancer Society. When my Dad was diagnosed with Stage IV liver cancer, they sent a volunteer mentor out to visit with him & my Mom, who was able to answer a lot of questions. I wish we had known about it 4 years earlier, when my Mother-in-law had brain cancer!

I hope you find a way to get the answers you need, and you can always come back here to Connect for support.
Sue